Rare Disease Weekend


Location: Jordan Hall of Science / Stinson Rugby Field / Downes Club Corbett Family Hall


The Notre Dame College of Science invites you to the Rare Disease Patient Advocacy Summit and the Parseghian Cup Rugby Game and Reception, part of a comprehensive Notre Dame College of Science Rare Disease Weekend September 16 & 17, 2022.

Friday, September 16

1–5 pm:  Patient Advocacy Summit | Jordan Hall Reading Room

Join discussion with patients, students, and industry representatives about the role of patient advocacy in pharmaceutical development, challenges to clinical trials and drug development, and most importantly the perspectives of people affected by rare diseases.

5:15–6:15pm: Parseghian Cup Rugby game (ND vs Michigan) | Stinson Rugby Field

Cheer on Notre Dame Men's Rugby team as they take on the Michigan Wolverines to benefit the Ara Parseghian Medical Research Fund at Notre Dame.

6:30–8:30pm: Parseghian Cup Reception & Dinner | Downes Club, Corbett Family Hall (enter through door 4)

Following the match, join us as both teams come together for a reception and dinner to learn about the history of the Parseghian Cup and the Parseghian's fight to find a cure for NPC disease.

Saturday, September 17

11 am–12 pm:  Saturday Science Exploration Series Lecture | 101 Jordan Hall

Kevin Vaughn, Ph.D.

2:30 pm California @ ND kickoff | Notre Dame Stadium

All are welcome to attend any or all of the events but we ask that you please RSVP here (insert link).  


Originally published at science.nd.edu.