Rare Patient Advocacy Summit


Location: Jordan Hall of Science, Reading Room (View on map )

Ds Dyne

The mission of the Minor in Science and Patient Advocacy is to provide a formal framework for students to become well-rounded advocates for people living with rare and neglected diseases. In collaboration with Dyne Therapeutics, this summit aims to increase awareness of rare and neglected diseases for which there is an urgency to understand the unmet needs of the patient and family communities that suffer from such conditions. Join us for a series of panel discussions, including three honored guests living with rare muscle diseases, senior leaders from Dyne Therapeutics, and the University of Notre Dame students and faculty. 

Originally published at spaminor.nd.edu.